Director, U.S. Federal and State Health Policy and Access, Rare Disease

The organization is seeking a Director of U.S. Federal and State Health Policy and Access focused on rare diseases. This role involves leading the development of a comprehensive health policy strategy to enhance patient access to innovative therapies, particularly in the context of complex treatments like cell and gene therapies. Key responsibilities include shaping the policy environment, collaborating with various stakeholders, and integrating health policy considerations into market access and regulatory strategies. Candidates should have at least 8 years of experience in health policy or government affairs, with a strong understanding of U.S. healthcare systems and payer policies.