Executive Director, Government Affairs

The organization seeks an Executive Director of Government Affairs to spearhead its global government engagement and public policy strategy, primarily focusing on the United States. This role is essential for fostering a favorable policy and reimbursement environment for the organization’s gene therapies targeting rare neuromuscular and cardiac diseases. Key responsibilities include developing a comprehensive government affairs strategy, engaging with federal and state agencies, and building relationships with policymakers and patient advocacy groups. The ideal candidate will have over 12 years of experience in government affairs or public policy within the biotech or healthcare sectors, with a strong background in FDA regulation and CMS…