Executive Director, State Government Affairs

The organization is seeking an Executive Director for State Government Affairs to spearhead its strategy at the state level, focusing on policies that support individuals with Dravet syndrome and other severe genetic conditions. This role involves monitoring and influencing legislative and regulatory developments, advancing access to innovative RNA therapies, and shaping Medicaid and rare disease policies. The ideal candidate will have over 12 years of experience in government affairs or public policy, particularly within the biotechnology or healthcare sectors, and a strong understanding of state Medicaid systems. Exceptional communication skills and the ability to build relationships with key stakeholders are essential, along with a…