Executive Director, State Government Affairs

The organization seeks an Executive Director for State Government Affairs to spearhead its strategy across key U.S. states, focusing on policies that enhance access to innovative RNA medicines for patients with severe genetic diseases, including Dravet syndrome. This role involves developing comprehensive state strategies, monitoring legislative developments, and shaping Medicaid and rare disease policies. The ideal candidate will have over 12 years of experience in government affairs or healthcare policy, with a strong background in biotechnology or rare diseases. Strong communication skills and established relationships with state policymakers are essential, along with a willingness to travel up to 40%.