Director, U.S. Federal and State Health Policy and Access, Rare Disease

The organization is seeking a Director of U.S. Federal and State Health Policy and Access, focusing on rare diseases. This role involves leading the development of a comprehensive health policy strategy to enhance patient access to innovative therapies, particularly in the realm of complex treatments like cell and gene therapies. Key responsibilities include shaping policy environments, addressing systemic barriers, and collaborating with various stakeholders including regulatory bodies and advocacy groups. Candidates should have at least 8 years of experience in health policy or government affairs, with a strong understanding of the U.S. healthcare landscape, particularly regarding rare diseases.