Operations & Data Specialist (Part-Time)

I AM ALS is a patient-centric movement revolutionizing how to end disease. The nonprofit provides critical support and resources to people with ALS, caregivers, and loved ones. We empower advocates to raise awareness and lead the movement against ALS in driving the development of cures. Founded in 2019 by husband and wife team Brian Wallach and Sandra Abrevaya, I AM ALS was born out of their desire to rewrite the ALS story for Brian and the tens of thousands of other people with ALS.

I AM ALS has rapidly grown into a powerful, patient-driven movement with an advocate base over 50,000 strong. We've passed critical legislation, hosted nationwide events, and provided essential support to thousands affected by ALS. But there’s more work to be done to grow awareness and amplify our impact.

About the Opportunity

We're expanding our capacity for strong and efficient internal operations and systems as we scale a national movement. This part-time position will work directly under the Chief of Staff to integrate and support a healthy, streamlined data infrastructure across our fundraising, volunteer, communications, and policy work. This is an incredible opportunity for someone who is passionate about building streamlined systems, strengthening data integrity for decision making, and applying these skills not only within a team but also to improve the experience of volunteers and donors. As I AM ALS continues to grow its scale and impact, we’re looking for a builder who can come along with us to craft a streamlined, nimble, tech-forward organization.

Key areas of work will include the following:

• Donation processing and data entry: Process and reconcile donations, maintaining clean records that support donor trust, stakeholder stewardship, and strategic decision making.
• Development operations: Support revenue tracking, analysis, and reporting; donor research and funder prospecting; and stewardship of donor and community fundraisers.
• Data infrastructure & CRM administration: Support CRM administration, including data integrity, automations, and user support, with a focus on improving how data is collected and used across teams.
• Operations administration: Provide limited administrative support to the Chief of Staff across finance, operations, IT, and legal compliance, while improving workflows and internal systems.
• Other duties as assigned: Pitch in on evolving operational needs in a small, fast-moving organization, with an emphasis on efficiency, clarity, and cross-functional collaboration.

Who You Are

You are resourceful, curious, and an early adopter when it comes to technology. You’ll spend the time to learn the full feature set of a tool to ensure you have a handle on all the ways it can be utilized; and enjoy being a to-go resource and coach for your colleagues as they adopt those same tools. You love drafting a nice, clear SOP but also understand the need to balance structure with agility.

You find yourself constantly refining processes, workflows, or systems to make them more efficient. You enjoy the challenge of honing a CRM to the point that it produces clean, dependable data for strategic decision making. At the same time, you’re also someone who enjoys providing direct support to members of the community - volunteers or donors, for example - to help address their needs and to ensure they have a warm, responsive experience of our organization.

This role will ask you to balance with equal proficiency between data and relationship management, always thinking about how to iterate on our internal operations to make the lives of everyone a bit easier. It spans across functions within our small team, so every day will be a bit different and call on you to leverage generalist skills.

To be successful in this role, you’ll need to have a combination of the following experience and qualifications:

• 2+ years of experience administering a CRM or managing, analyzing, and reporting on data (Experience with EveryAction is a bonus)
• 2+ years of experience with developing and maintaining workflows, automations, and data collection tools
• Experience with fundraising or fundraising operations is strongly preferred
• Experience with or interest in being a champion for AI adoption
• Demonstrated strength and interest in maintaining flexibility and creativity in a fast-paced startup environment; willingness to give and receive feedback
• Excellent communicator, collaborator, and critical thinker
• Experience in health, nonprofits, and/or patient advocacy helpful but not required

Position Details

• Type: Part-time position (approximately 20 hrs/wk). We’re open to discussion as to how this role is structured (contractor or part-time employee), but expect it to be performed M-F during working hours.
• Details: Travel will be occasionally required for annual events or staff gatherings.
• Location: This position is primarily remote, but must be located in metro Washington, DC, with the ability to commute at least 1x per week for administrative duties.
• Compensation: $2,500–$3,500 per month, depending on experience and whether the role is structured as a part-time employee or independent contractor.

Our mission is to accelerate a cure for ALS by mobilizing collective power to drive urgent policy and systems change. Our employment decisions are based on I AM ALS’ goals, business needs and individual qualifications, without regard to a person’s race, religion, sex, gender identity or expression, sexual orientation, national origin, age, disability, genetic information, veteran status, or any other status protected by law. We are building a bold, inclusive, and mission-driven team because solving ALS demands it, and we would welcome applications from candidates of all backgrounds.

To Apply

Please submit your resume and replies to our application form. Applications will be reviewed on a rolling basis and accepted until the position is filled, but priority will be given to those who apply before February 13, 2026.