Vice President, Federal Government Affairs & Policy

The organization seeks a Vice President of Federal Government Affairs & Policy to lead its advocacy strategy focused on advancing federal policies that support innovation and patient access in the rare disease sector. This hybrid role, requiring at least two days per week in Washington, DC, involves engaging with Congress and federal agencies to influence legislation related to drug pricing, FDA regulations, and orphan drug policies. The ideal candidate will have over 15 years of experience in federal government affairs or healthcare advocacy, with a strong background in biotechnology or the organization policy. A proven track record of working with senior officials and managing lobbying efforts is essential.